Are you suffering from eczema? I have suffered with terrible eczema for about 10 years, since the pregnancy of my first daughter, it started when I was 18 years old and the experts and I have never managed to get this horrid condition under control, probably due to an immune system problem which has caused a crazy number of problems over the years. I have little hope of it going away at all, but there are things I have in place to manage it, and even the worst flare up is pretty much unstoppable, I have very strong anti-histamines prescribed which I take 3 times a day, as well as 2 types of rather strong steroid ointments for my face and body and copious amounts of bath creams, shower creams, moisturisers and emollients which I use exactly as I should, and stick to a routine always.
So this is a post of things not to say to a long term eczema sufferer as I hear them a lot and there is nothing more aggravating (although I fully understand it is unintentional) then a non sufferer trying to tell you how to manage something they have never experienced to this extent, this is supposed to be light-hearted approach of venting my little bug bears.
I’m sorry, do you not scratch an itch when you get one? How about times that by one million and across your whole body and then trying NOT to scratch it, go away please, I know how to scratch it without irritating it to the point of bleeding… unless I am asleep of course but I have special gloves for that, however, it just isn’t possible for me to wear them 24 hours a day so YES I will have a little scratch (normally a rub) to help ease the temptation to hack my skin off with my nails (which coincidentally I have to cut off to the point of skin to avoid any serious scratching injuries).
YOU NEED TO MOISTURISE MORE
WHAT!? I moisturise four/five times a day, it takes a lot of time out of my life to do this, I have no time for anything other than this as if I don’t and my joints seize up due to pain, cracking and infection then I cannot leave the house! I live for steroids (twice a day) and moisturise in the morning, during the day, I even go home at lunch time so I can put MORE on, as well as when I get home and then once again at bed time. Honestly, how much more do you think I can put on. I can go through 3 large tubs of moisturiser a week when it gets real bad (like when the seasons change etc).
HAVE YOU TRIED THIS?
Likelihood is no, but it is still annoying, mine has been known to flare up due to certain ingredients, I am a bit reckless when it comes to make up due to limited choice otherwise but on my body I will not try anything unless I have seriously checked and triple checked the ingredients, so when you tell me I should try E45, no I am allergic to it, as well as Cetaphil, Sudocrem, someone offered me some Bepanthen the other day and I nearly winced at the thought of the pain that would inflict.
MAYBE ITS YOUR DIET
I have done numerous tests here, I quit dairy, wheat, sugar, everything for 3/4 months and it made no difference to my diet, I eat a well balanced varied diet of all food groups and the tests the doctors did also concluded that I had no obvious food allergies, but thank you for caring.
SUNBEDS ARE SUPPOSED TO HELP
Seriously, that is great that your friend with psoriasis managed to get rid of it with the sunbeds, but the UV treatment has no effect on mine, if anything it dries my skin out even more and makes it unbearable, like seriously hot, I even went through a mini phase of trying out a normal sun bed and WOW I will never do that again! I spent a week on pain killers just so I could get out of bed.
MAYBE ITS AN ALLERGY TO SOMETHING
Unfortunately eczema is not caused by allergies, if you are suffering from eczema you’ll know it is a condition that there is no known cause or cure for, although I take the anti-histamines to help they purely take away the itch but the bad skin still remains, the worst places I get it are in any creases, hands, arms, ankles, FACE boohoo and shoulders/back, at times of a bad flare up I have had up to 85% of my body covered in it and as you can see the images above are my skin during the start of a flare up.
So thanks for reading and remember, have some sympathy, us sufferers are doing all we can to keep it under control, sometimes it’s just not possible and under stress in this weather let’s just say I’m caked in bruises from those naughty nighttime scratching sessions! *wince*
What helps you when suffering from eczema?
– Emma xXx